Geneva, Oct. 15 -- International Clinical Trials Registry received information related to the study (DRKS00040639) titled 'What Families Need: A Needs Assessment Within the Context of Family Centered Counseling' on Oct. 9.
Study Type: observational
Study Design:
Allocation:
Masking:
Control:
Assignment:
Study design purpose: health services research
Primary Sponsor: Zentrum fur seltene Erkankungen Bonn
Condition:
Rare Diseases
Intervention:
Group 1: Parents of children with rare diseases will be surveyed using standardized questionnaires before counseling at the Bonn Center for Rare Diseases and again after the counseling session.
Recruitment Status: Not Recruiting
Date of First Enrollment: 15/10/2026
Target Sample Size: 50 ...