U.S., July 23 -- ClinicalTrials.gov registry received information related to the study (NCT07720518) titled 'Spinal Muscular Atrophy and School Transitions' on July 17.
Brief Summary: A qualitative questionnaire-based study to explore the experiences of children and young people with Spinal Muscular Atrophy (SMA) and their families regarding school transition and educational participation.
The study objectives:
To identify barriers to successful educational transition. To advocate for patients and families during the transitional process. To explore experiences of inclusion, access and support within school settings. To understand the coordination between education, healthcare and support services.
To inform the development of practical...