Clinical Trial: NCI Childhood Cancer Data Initiative (CCDI) Led Pediatric, Adolescent, and Young Adult Rare Cancer Registry for Very Rare Solid Tumors

U.S., March 25 -- ClinicalTrials.gov registry received information related to the study (NCT07489378) titled 'NCI Childhood Cancer Data Initiative (CCDI) Led Pediatric, Adolescent, and Young Adult Rare Cancer Registry for Very Rare Solid Tumors' on March 21.

Brief Summary: This study will follow children, adolescents, and young adults with very rare cancers over time to better understand their health and treatment experiences. Researchers will collect medical information from medical records, family history, and questionnaire responses about patients health and quality of life for up to five years.

Tumor samples and saliva or cheek swabs will also be analyzed through the CCDI Molecular Characterization Initiative to better understand the ...