Clinical Trial: Health-related Quality of Life in Chiari Malformation Type 1 - A National Cross-Sectional Patient Survey

U.S., Sept. 15 -- ClinicalTrials.gov registry received information related to the study (NCT07818122) titled 'Health-related Quality of Life in Chiari Malformation Type 1 - A National Cross-Sectional Patient Survey' on Aug. 27.

Brief Summary: The goal of this observational survey study is to investigate factors that may affect the health-related quality of life (HRQoL) in adults with Chiari malformation type 1 (CM1). The main questions it aims to answer are:

How do CM1 patients rate their HRQoL compared to the general population? Are there any factors that lead to better or worse HRQoL in CM1 patients? Is there a difference in HRQoL in operated versus non-operated CM1 patients?

Participants will be identified via the Swedish National Boa...