U.S., March 28 -- ClinicalTrials.gov registry received information related to the study (NCT07497581) titled 'A Longitudinal Study on Family Adaptation and Relationship Dynamics in Pediatric Rare Diseases' on March 23.
Brief Summary: Rare diseases in children can affect not only the child's health but also the well-being and relationships within the entire family. Parents often experience stress, uncertainty, and emotional strain, which may in turn influence their child's mental health and quality of life. However, little is known about how families adapt over time to living with a rare disease or how daily experiences and family interactions shape this process.
This study aims to better understand how children with rare diseases and thei...