New Delhi, Aug. 25 -- he parents of nine-month-old Aditi Nilani, who has been diagnosed with the rare and severe genetic disorder Spinal Muscular Atrophy (SMA) Type 2, are making urgent efforts to raise Rs.16 crore for her treatment.
Aditi requires a gene therapy drug, which has to be imported from abroad, at an estimated cost of Rs.16 crore. Several organisations have joined the family in their efforts to raise the funds needed for the treatment.
According to Aditi's mother, Shobana, who is based in Delhi, her daughter is battling SMA Type 2, a serious genetic neuromuscular disorder that affects muscle strength and physical movement.
Aditi requires immediate specialised medical care. Doctors at the All India Institute of Medical Science...