Geneva, Aug. 6 -- International Clinical Trials Registry received information related to the study (ChiCTR2600129194) titled 'Design and preliminary application of a specialized care diary for children with rare diseases' on July 31.
Study Type: Observational study
Study Design:
Cross-sectional
Primary Sponsor: Xinhua Hospital Affiliated to Shanghai Jiao Tong University School of Medicine
Condition:
Rare respiratory diseases in children: cystic fibrosisRare digestive and nutritional diseases in children: short bowel syndrome and others (including monitoring of symptoms, medications, nutrition, and growth and development)
Recruitment Status: Not Recruiting
Phase: N/A
Date of First Enrollment: 2026-08-01
Target Sample Size: Obs...