U.S., March 5 -- ClinicalTrials.gov registry received information related to the study (NCT07448181) titled 'Real-life Ecological Momentary Assessment of Lived Burden in Hereditary AngioEdema' on Feb. 26.
Brief Summary: The aim of this study is to conduct an in-depth analysis of the Burden of Disease (BoD) perceived by patients with Hereditary Angioedema (HAE), through daily prospective observations based on Ecological Momentary Assessment (EMA) via digital surveys and standardised questionnaires.
Participants will answer online survey questions about their perceived burden of disease for 8 consecutive weeks. The main hypothesis is that daily prospective observation (EMA) will reveal a higher and more fluctuating burden of disease compare...