Clinical Trial: Effects of Developmental Support for Mothers of Infants With Spinal Muscular Atrophy

U.S., April 24 -- ClinicalTrials.gov registry received information related to the study (NCT07547189) titled 'Effects of Developmental Support for Mothers of Infants With Spinal Muscular Atrophy' on March 28.

Brief Summary: Spinal muscular atrophy (SMA) is an autosomal recessive neurodegenerative disorder causing progressive muscle weakness and atrophy. This mixed-methods study aims to provide developmental support to mothers of infants (aged 12-36 months) with SMA Type 1 and to evaluate its impact on infants' developmental outcomes and mothers' developmental knowledge.

Participants will include 13 mothers recruited via purposive sampling from a university hospital's Pediatric Chest Diseases Outpatient Clinic. Inclusion criteria require m...