HGP2 Rare Disease Alliance of Asia-Pacific Region launches in Malaysia
Singapore, May 13 -- The HGP2 Rare Disease Alliance of the Asia-Pacific Region (HGP2 RaDiAnce-APAC) was officially launched in Kuala Lumpur, Malaysia on May 10.
Dr Nor Fariza Binti Ngah, Deputy Director-General of Health (Research and Technical Support) at the Ministry of Health of Malaysia, joined leading experts to discuss urgent priorities in rare disease diagnosis, genomics, and public health response.
The Alliance unites members from 10 countries to address the diagnostic gap under the framework of the Human Genome Project II (HGP2). A unified joint declaration was established for rare disease prevention and genomic medicine in Asia-Pacific. The declaration covers five key areas: ethics, accessibility, collaboration, acceleration, ...
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