SC pushes for permanent funding mechanism for SMA patients
New Delhi, Oct. 8 -- The Supreme Court (SC) on Thursday called for a permanent funding mechanism to help Spinal Muscular Atrophy (SMA) patients meet the prohibitive cost of treatment, saying their access to life-saving therapies cannot depend on sporadic charity or one-off government grants.
A bench headed by Chief Justice of India Surya Kant, along with Justices Joymalya Bagchi and V Mohana, asked senior advocate and amicus curiae Aparajita Singh to draw up a comprehensive proposal for a dedicated corpus that can receive regular contributions and provide sustained financial assistance to patients.
"We need a regular channel, a permanent system," CJI Surya Kant observed, stressing the need for an automatic and continuously maintained fu...
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हमे संपर्क करें.