WASHINGTON, Sept. 10 -- Sen. Shelley Moore Capito issued the following press release:
FAIRMONT, W.Va. - Yesterday, U.S. Senator Shelley Moore Capito (R-W.Va.), made a stop in Fairmont, W.Va. at the book signing of "Winnie's Big Day," a children's book written by 11-year-old Winnie Stanley, a resident of Cheat Lake, W.Va., who was diagnosed with Spinal Muscular Atrophy (SMA) at 18 months old. "Winnie's Big Day" is a story Stanley hopes will help other children facing medical procedures feel less alone throughout the process.
After learning more about SMA, the impact the disease was having on Winnie and others, and a recent SMA biomedical breakthrough, Senator Capito advocated to ensure access to a life-changing SMA treatment which had been...