WASHINGTON, Dec. 22 -- Health Resources and Services Administration has issued a notice called: Addition of Metachromatic Leukodystrophy to the Recommended Uniform Screening Panel.
The notice was published in the Federal Register on Dec. 22 by Thomas J. Engels, Administrator.
Summary: The Health Resources and Services Administration (HRSA) published a Federal Registernotice on August 14, 2025 (90 FR 39196), requesting comments from the public on the potential recommendation of adding Metachromatic Leukodystrophy (MLD) to the Recommended Uniform Screening Panel (RUSP). After consideration of public comments and evidence-based reports, HRSA recommended to the Secretary of Health and Human Services (HHS) that MLD be added to the RUSP. The Se...