U.S., Aug. 26 -- ClinicalTrials.gov registry received information related to the study (NCT07786142) titled 'Transition of Care in Pediatric Rare Endocrine Disorders' on Aug. 21.
Brief Summary: This study will evaluate the transition from pediatric to adult care in patients with pediatric-onset rare endocrine disorders. The study includes three components: a review of medical records to assess previous transition outcomes, a survey of adult patients about transition experiences and quality of life, and an evaluation of a structured transition program for participants aged 18 years or older. The transition program provides assessment of transition readiness, individualized education, clinical information transfer, coordinated care between p...