Washington, Dec. 16 -- Congressman Gus Bilirakis issued the following press release:
Congressman Gus Bilirakis (R-FL), Co-Chair of the Congressional Rare Disease Caucus, today praised the U.S. Department of Health and Human Services' decision to add Duchenne Muscular Dystrophy (DMD) and Metachromatic Leukodystrophy (MLD) to the Recommended Uniform Screening Panel (RUSP), underscoring the importance of early diagnosis for children and families across the nation. Congressman Bilirakis joined HHS Secretary Robert F. Kennedy, Jr., fellow Members of Congress, patient advocates, and families at today's announcement, including the Beacham family and their daughter, Mattie, whose personal journey illustrates the life-changing impact of early newbo...