Tokyo, March 1 -- UMIN Clinical Trials Registry (UMIN-CTR) received information related to the study (UMIN000060728) titled 'The relationship between participation of patients in the Intractable Diseases Council and the the support systems for patients with intractable diseases' on March 1.

Study Type: Observational

Primary Sponsor: Institute - Ibaraki Prefectural University of Health Sciences

Condition: Condition - Intractable diseases Classification by malignancy - Others Genomic information - NO

Objective: Narrative objectives1 - This study aims to clarify whether participation by patients with intractable diseases in the Local Council on Measures for Intractable Diseases and sharing of their needs with relevant organs will promote ...