U.S., Oct. 29 -- ClinicalTrials.gov registry received information related to the study (NCT07900672) titled 'Register for Medical Data, Functional Scales, and Care Outcomes in ALS, SMA, and Other Motor System Disorders' on Oct. 06.
Brief Summary: This observational registry collects existing medical and routine care data from people with amyotrophic lateral sclerosis (ALS), spinal muscular atrophy (SMA), and other motor system disorders. The registry includes information about disease course, functional abilities, medications, medical devices, therapeutic services, nutrition, breathing support, and nursing care. It may also include patients' assessments of their treatment and care.
The main goal is to describe how people with these condit...